Addison's Disease Awareness

Bringing comfort and warm blankets to children.

Arielle, Mom, Grandmother

Arielle’s Team

Arielle Johnson works with her mother and grandmother to make fleece blankets for the pediatric endocrinology unit at UMass Memorial Hospital.

 

Bringing Comfort with Blankets

Our homemade hugs blankets are made for the children undergoing treatments in Pediatric Endocrinology. 

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Addison’s Disease

Arielle would like to bring public awareness of this rare disease to the general public.

How You Can Help

Please contact 

arielleshomemadehugs@yahoo.com if you or your group are interested in making blankets or donating supplies!

AJ Lax Blankets crop

Note From Arielle

Hi, my name is Arielle Johnson and I am 20 years old. I am on the women’s lacrosse team and enrolled in the Occupational Therapy program at Springfield College. The Homemade Hugs project is inspired by my personal experiences growing up with a rare autoimmune disease. Freshman year of high school my life changed forever. I was diagnosed with Addison’s Disease. Addison’s Disease affects 1 in 100,000 people in the U.S and I am one of them. At 14 years old, my life had changed forever. The first year was really challenging for me, adjusting to my body, and learning how to adapt to life again. Although this experience was very tough, it allowed me to meet life changing people. I will never forget the nurse who took care of me when I was first diagnosed. In a time where I was afraid, that nurse brought me comfort. She single-handedly inspired me to pursue a career in healthcare. However, I knew that wasn’t enough. 

When I came home from the hospital I knew that I needed to do something to provide that feeling of comfort to children in need. My grandma had always made me tie fleece blankets growing up and passed,that passion down to my mom. My mom and grandma inspired the idea to make blankets and donate them to the Pediatric Endocrinology Unit at UMass Memorial Hospital (my unit). The hardest part for me after being diagnosed was feeling like I was alone. I still to this day have never met anyone else diagnosed with Addison’s Disease. I wish I were able to relate to other kids who are feeling like I was. The goal of Homemade Hugs is to make children know they are not alone throughout their health journey. That is something I wish I had when I was first sick and I want to prevent any future kids from feeling that way.

 

The first donation we had 8 blankets and I remember being so excited. My last donation had 50 blankets. Over the past 7 years we have donated around 300 total blankets. I never imagined Homemade Hugs to grow into what it is today, but I am so grateful it has. I cannot thank my grandma and family enough for supporting me and inspiring me to continue this journey. Even my dad and brother who are not very crafty help make blankets. I also want to thank my friends and teammates who have helped make blankets. I cannot thank them enough for taking the time to help children in need.

 

Every time I go to donate our homemade blankets, the feeling comes back to me of being scared and alone. However the blankets give me hope that the children of the Pediatric Endocrinology Unit are not alone and they can overcome any obstacle that gets in their way. Knowing that such a small thing can change a child’s experience means more to me than can
ever be put into words.

Where the Blankets Go

The blankets are donated to the Pediatric Endocrinology Unit at UMass Memorial Hospital in Worcester, Massachusetts. This is where I was diagnosed, so it holds a very special place in my heart. I have been working with the same child life specialist for over 5 years now and we have formed a great relationship. The blankets are given to children with different diagnoses in the
endocrinology department. They also are being used in the oncology department when children
are coming in for chemo, radiation and infusions.
 

How You Can Help

Please contact arielleshomemadehugs@yahoo.com if you or your group are interested in making blankets or donating supplies! Are you a youth group leader, a scout master, or involved in an after school activities program? You can take part in Arielle’s Homemade Hugs Project by spending a few hours assembling warm blankets with your group. Any donation of time or of fleece would be a welcome contribution.